Category: fibromyalgia


#SoCS and #atozchallenge


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If you want to know and possibly participate in this challenge go HERE. This is my first time so I am not quite sure what I’m doing. I just like having prompts to get the blogging done. We are supposed to keep this short but this may be long as I am also doing the:

 

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Stream of Consciousness Saturday is brought to us by Linda G Hill. Click her name to see how this works. It does help get the writing chops working.

So following both prompts here is today’s blog:

As it Applies: Anxiety, Adventure, Aches, and pains.

 

Thursday morning after a night of no sleep, I rarely sleep well when I know I have to get up early for something important, I got up and talked Kali into her vest, harness, and leash. I told her that today would be an adventure. She was pretty excited about wearing the vest because the last few times she got to go on walks.

When you think of doing something for the first time, you picture it how you think it will be. I pictured one of the bins we take to hold our groceries for a dog bed to sit next to me. Instead, I put her blanket next to me. Hubby took the bin up in the seat with him.

For my tailbone issue, I brought the

https://www.amazon.com/gp/product/B01EBDV9BU/ref=oh_aui_detailpage_o06_s00?ie=UTF8&psc=1  81y3YeUzI+L._SL1500_

I found it more helpful to turn it upside down with the little grippy side up as it made it more firm. It did help the bumpy parts of the road not hurt quite so much but it still hurt my back and neck. But maybe turning to make sure Kali was okay, or holding her on my lap made it worse?

By the time we got to our first stop we had been in the bus for an hour. Kali and I were both feeling car sick. Not enough to make messes but just yuckie, ya know? Most folks get out of the bus and get breakfast. I don’t like most breakfast foods so I pick up Pringles. The tea and coffee are always too hot for me so I just picked up a diet Dr, Pepper. These help settle my tummy.

I felt naked as I walked Kali around the store. I don’t know why. She was very good. Heeled just where she should. No one said anything about her and there were many employees around that could have said something. So I gave Hubby my purchases and took Kali back out for a walk. The next get out was another half hour away.

A couple chips and swigs of pop and my tummy sorted itself out. While everyone was eating their breakfasts I tried to give Kali a drink of water and her food. She refused.

Once in the big town we dropped people off at their appointments. Hubby asked if I wanted to come with him but I felt funny about it. I told him we would stay on the bus.

Bad news? Hubby will need to have surgery on that shoulder. Apparently there was another chip on the top of the rotator so, yeah–not just one chip on his shoulder. LOL! Still, this is going to get more complicated and painful before it gets better.

I didn’t even get out at the dollar store. There are things I need that I should have checked to see if they had but I still didn’t feel up to it. And those stores are always crowded, even without people in them.

Most every stop I took Kali out for a walk. The weather changed in that short time, EVERY time! Cloudy, sunny, raining, windy. Windy was when I aimed us back to the bus. It was the first time I’ve ever taken bags to clean up after her. On our walks in the countryside there is no need. It’s all dirt. So this was a newness for me. No biggie, just needed to be more aware.

Even at Wally World I didn’t take her in the store. I just couldn’t handle –something. Too many people? Worrying about her? I don’t know. So broken shouldered Hubby had to do the shopping. We couldn’t afford much so it didn’t take long.

Meanwhile, it was fun on the bus. Everyone has stories to tell. We laugh freely. Our driver is such a wonderful person. Always cheerful and helpful to everyone on the bus. She has that kindness that is rare. I love being on her bus. It’s just the ride itself that kills me and makes me carsick. Think about the wealth of experiences all these seniors have. There is so much to learn from everyone. And there aren’t that many people. It’s a small bus so it’s most comfortable with fewer than 6 people because of how full it gets after everyone goes shopping.

All the people loved Kali and though they spoke to her and even offered her treats, they were respectful of her job and didn’t overwhelm us. In fact, after not eating all day, one of the ladies gave her a treat that she actually liked.

At the end of the day, we dropped people off at their homes. That was the bad part for me. Each house had a dog that runs up to say hi to the folks on the bus. Kali claimed the bus. I think she was protecting me. But I tightened her leash and put her on the other side of me with a NO. I still said hello to the visiting pups while holding Kali off. Maybe I should have given her a chance but I just didn’t want that kind of behavior.

When we got home Kali was SO excited she ran from room to room and doing that crazy jumping running thing dogs do when they are happy. I took off her vests and she did that shake it off thing. She was a very happy puppy then.

But I have had 3 days of exhaustion and pain from doing very little. I don’t understand it.

I Hate Being This Tired!


It is almost 10 PM. I usually have a couple hours left to get things done. I’m afraid I am petering out early. If I find a bit more before midnight, I’ll try again.

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Throw Away Thursday

Naps and bingeing on the last two episodes of Vampire Diaries. I am still nearly brain dead and not sure if I am up to making the long blog that the adventures of yesterday and the meanderings in vampireville want told. The previous weird sentence brought to you by fibro-fog. It is similar to the feelings you get when catching the flu, or maybe a case of hangover. That one I have never experienced just heard about from many people.

How do you regular bloggers do this on your off days? I do have plenty to say about Kali’s adventures on the bus and Bend. I just want to do it justice and learn what I can about how good it was and how to improve our next experience, if my body can recover.

'When you get on the bus, you should go somewhere instead of just riding all day.'

And I learned a lot from Vampire Diaries that I wanted to record for myself and see what others have felt. I don’t know if any of you remember but I used to find Vampires, Zombies, and Werewolves and the like just silly. But I have learned that they are actually vehicles to character and plot development.

I just don’t have enough in me right now to manage the thoughts I want to put out there. I’ll hit these on the next couple of days. Needless to say, I am alive and have a lot to share. So is Kali. I can’t say the same for all Vampires.

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Service Dog


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It suddenly occurred to me today how I can help Kali not be left at home alone. She has separation anxiety and will tear up the place if left alone. That was why her MamaLaura (my daughter) had to giver Kali to me. She had to go to work and leave the poor pup alone. We are retired so there is almost always someone here so she is never alone. But should I need to go to the city (an hour and a half away) on the senior bus it might be that she wouldn’t be happy. But there might be a time when I need to go to the doctors or something.

So I was looking at this page: United States Service Dog. Has anyone done this? It says I don’t need a doctor’s note though I could probably find my doctors who put me on disability ages ago. She does help me feel better just by being so cute! She’s been well trained as far as simple commands. I think she’d do well on the bus just sitting with me and giving me the pain distractions I need to get through the rough part of the trip.

It is very beautiful (scenic) to see but the road itself is so full of potholes and my tailbone usually hurts so bad by the time we get to town that I can barely walk. After a full day, coming home is even worse, especially if it is dark and I have nothing to distract me from the pain that is so unbearable that I have to sit straight up and not lean back. Then it starts hurting my whole back. Once I am home I feel crippled for a week. It sets off huge fibro flares that make me worthless to do anything but sleep.

Look, I know that having the dog with me won’t prevent a lot of that pain, but it may make it a little easier to deal with. Does that make sense?

Now I just need to figure out how to afford it. I’d love her to have the vest and all, but even the basic (just a certificate and ID card) is $69. Is this a good idea or am I on another wild goose chase that wouldn’t help either of us and money out for nothing????? Are there things I need to think about that maybe others have gone through? It seems like a win-win idea but maybe I am being naïve?

Ugh! Weather!


Just to make a blog about it–I’m not blogging today. The weather is hurting me. I’m going to curl up in that corner over there—–> and sleep and knit until I feel better. That’ll bring me to Stream of Consciousness Saturday. I expect a deluge!


The Just Jot It January 26th prompt, brought to you by Kelli of Forty, c’est Fantastique! is: “Extraordinary.” Use it any way you’re inspired to. And make sure you stop by and say hi to Kelli as well! Here’s her blog:  https://fortyandfantastique.wordpress.com/ .

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Extraordinary

 The only thing I can say is that life is extraordinary! I can’t believe how fast a day goes nowadays. How can that be when I am just at home not doing more than knitting (loom), hitting FaceBook, taking the dog out, doing dishes. You know, those ordinary things.

Okay, yesterday and today I felt the need to play a game or two. They’re those hidden objects games, Return to Ravenhearst and Love Story: A Beach Cottage. Every now and then I feel the need to change it up. I let time lapse between playing so I don’t get used to the games and they stay the challenge. I know, I don’t do the shoot ’em ups. Never could quite figure those out. My kids love them: EQ etc.

But I only played yesterday and today. These are the only time wasters I feel I have in my life. I do have the TV on. I do that so that I have something to distract me from my fibro. And it gives me background noise for the knitting. I need no meds if I can be distracted enough. I think that is better for me than any of the drugs the doctors have put me through.

The snow is melting. The sun was shining. That made today extraordinary. I actually stepped off the porch and walked a few feet with the dog and didn’t feel I was going to slip or soak my only-in-crocs feet. That was special. That and doing a Goggle Hang-0ut with a special friend.

Well, though I did do my Spanish for the day. I need to at least put in a few minutes on German before I go to bed. Hubby is already asleep. Vicodin is doing its job. Night, everyone, I hope your life is extraordinary, too!

Thank you, Linda G Hill for this fun blogging experience and all the help and encouragement along the way!

Just Jot It Jan 19 – Rubbish


This IS Rubbish!

So, twice a month or so we have the opportunity to ride the senior bus to the nearest city and hour and a half away. We do the bulk of our grocery shopping and hubby does doctors appointments. I don’t go anymore because the seats hurt me and the cold hurts me. Every time I went those pains would set of the fibro and I’d be down for a week to two weeks. Knowing that was why I felt we could take on the separation-anxiety-dog. I’d always be home for her. And that part has worked out marvelously.

WELL… the city trip was this morning. Hubby got up and got ready to go. At 6ish he walked out to meet the ride. Because of last night’s rain, our snow was ice. I bet you can see where that is going. Yep, he fell and messed up his shoulder pretty bad. So now the trip for him wasn’t to get groceries but to go to the doctors. He has to go again tomorrow for x-rays. Doc didn’t know if it is broken but put him in a sling and sent him home.

Meanwhile, my brother has caught the cold/cough/flu from hell so he can’t go to work or do much more than sleep hoping to get better.

I am the world’s worst nurse. My hubby is way better at it than me. When I am flaring he takes very good care of me. But now it is my turn to play nurse around here. This is– I am rubbish at this!

As anyone who has ever had a broken or sprained limb knows, everything is a challenge. Luckily it is his left shoulder. Even still getting into and out of bed leaves him, and me, exhausted as he tried to not hurt and move around and of course moving makes it all hurt. We had to laugh as it seemed he was a turtle on his back trying to get up. I offer my hand but I can’t pull him up. No amount of wiggling worked to get him in a better position to escape the bed. Finally, we rigged up a belt system he could grab the belt that was tied to a nearby chair and that did it. I just hope he doesn’t have to get up in the middle of the night. And tomorrow he has to go back to town all over again. And for these two trips, there will be no groceries. Because he just won’t have the energy or time to do it. That will have to wait til next week.

I take comfort in the fact that about 4 in the morning it is supposed to snow. If that’s the case walking out to the bus at 6 might be a little easier if it is deep enough to cover the ice. If not there will be a lot more to this story tomorrow. Stay tuned…

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Thanks very much to Wendy for today’s prompt, “rubbish.” Please visit her post for today and say hi! You can find it here: https://waffle-with-wendy.blogspot.ca/2017/01/jusjojan-day-19-rubbish.html

And don’t forget, even if you haven’t been participating in Just Jot It January up ’til now, it’s not too late to start! Click here for details and to read the other amazing posts: https://lindaghill.com/2017/01/19/jusjojan-daily-prompt-jan-19th17/

And, again, thank you, Linda G Hill, our fearless leader!


Source: SEEKING EQUILIBRIUM: PAIN AND MUSIC THERAPY

Alone in a Crowd


Alone in a Crowd.


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