Tag Archive: Fibro


Silence


It has been a long time since I actually wrote more than a few words over here. Let’s see if I can catch you all up to date.

No, I didn’t finish  Camp NaNo. I got to about halfway and ran out of juice? Fibro-flare? Life? happened. I can’t remember two minutes ago, so remembering that long ago is foggy. I still like my plot potential but haven’t been able to get back into it. Time travel has to be well thought out. Since this one is different than any I have ever read, I don’t want it to be NaNo-ed together. I need to step back and make a tight outline. Will it be this year’s NaNo? I haven’t decided. Nor have I decided if I want to write a NaNo this year. If I can get a tight enough outline before Halloween, I might just try to add another 50K to this 25K story. Who knows?

I have spoken about my new medicine, Gubabapentin (Neurontin), that may be helping me have a few good days now. Yes, a few. As of two week ends I could count 3 good days. On these days I felt pain in joints but not the all over pain and fatigue I have gotten used to. The doctor said it takes a while to titrate to the proper dosage that will be better for me.

Which brings me to just over a week ago.  Two  Wednesdays ago, a friend called saying she wanted me to accompany her to the GeoCaching Con in Las Vegas. At that time it seemed that it would take a perfect storm to actually pull it off. She was being gifted the trip, basically, even down to car and hotel room. Even that day (Wednesday), I felt horrible with fibro so I was afraid to think of the week end.

As it turned out, my hubby was able to help me pack, and I was able to go. I figured that even with pain I wouldn’t be doing more than I do here at home. I didn’t feel well enough to trust myself to help with the driving, but we were able to stop at rest stops along the way and even pick up a couple caches. So I was sitting in a car or in a hotel room. I still had fibro-pain, worse coming home than on the trip down but the sites I saw from where I was sitting was at least different than the four walls I see here. The bad thing? A flare I felt on the trip back got worse the whole next week. I am thinking I am better, finally, today. Hence a real blog.  🙂

 

Dar49 Daily


Dar49 Daily. Is out!! Sorry for the delay. Fibro-flare and fog and shiny chickens got in the way.

Be Aware: Whining


English: Vladimir Bystrov. 2006 Russian Premie...

English: Vladimir Bystrov. 2006 Russian Premier League (FC Zenit St.Petersburg v.s. FC Spartak Moscow) Русский: Владимир Быстров в матче 7-го тура чемпионата России 2006 против петербургского «Зенита» (Photo credit: Wikipedia)

In case you have wondered where I’m hiding, picture a little whiny ball of pain curled up on the bed. That’s me. Except I can’t stay in a ball. I must constantly change my positions. It’s like those first few days when you know you’re catching something, you’re all achy, can’t think, pretty worthless to everyone. Can’t even stay focused on a book or television show. Too cold then too hot, dizzy–blech!

For me that is a flare, a fibro-flare that comes with fibro-fog. Nothing soothes the pain and it is ALL OVER!

It always comes as a surprise. I felt so good last week end and the first of the week. When my pain isn’t the major part of my life, I do things, fun things. I make plans. If I think of the pain, I almost think it was just a dream. Hey, maybe I could go back to work?! Maybe I could go on that awesome hike!

I did manage to go to my writers’ group on Wednesday evening. I had a great time. Even started a new story that was fun. But then by about 9pm I started fogging out. I couldn’t sleep all night. Thursday was a blur and that blur continues today. Grrrrr! I know I can’t get a job. I know I can’t make plans. Still, I try not to sleep my day away. I read small amounts, surf the web lightly, try to write down ideas of what I might like to do when the flare becomes more bearable.

***

After going through this for a few years, I do console myself with the fact that it doesn’t last forever. Along with that notion comes, when it is gone I am so wiped out that it takes a few days to recover. Then I can’t remember all the things I wanted to do once I got well. Any exercise routines must be started anew. All the tasks around the house that waited on me are still there. Then I am overwhelmed with what to do first, and I feel bad that what I want to do is run around the block, go to the park and play. I don’t want to do housework or boring stuff. Yet, at 63 the life of guilt hits me with the hammer. Then the cycle continues and no fun is had.

I must learn to find that happy medium. Maybe she can help me! 😉

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