Tag Archive: fibromyalgia


I Hate Being This Tired!


It is almost 10 PM. I usually have a couple hours left to get things done. I’m afraid I am petering out early. If I find a bit more before midnight, I’ll try again.

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Throw Away Thursday

Naps and bingeing on the last two episodes of Vampire Diaries. I am still nearly brain dead and not sure if I am up to making the long blog that the adventures of yesterday and the meanderings in vampireville want told. The previous weird sentence brought to you by fibro-fog. It is similar to the feelings you get when catching the flu, or maybe a case of hangover. That one I have never experienced just heard about from many people.

How do you regular bloggers do this on your off days? I do have plenty to say about Kali’s adventures on the bus and Bend. I just want to do it justice and learn what I can about how good it was and how to improve our next experience, if my body can recover.

'When you get on the bus, you should go somewhere instead of just riding all day.'

And I learned a lot from Vampire Diaries that I wanted to record for myself and see what others have felt. I don’t know if any of you remember but I used to find Vampires, Zombies, and Werewolves and the like just silly. But I have learned that they are actually vehicles to character and plot development.

I just don’t have enough in me right now to manage the thoughts I want to put out there. I’ll hit these on the next couple of days. Needless to say, I am alive and have a lot to share. So is Kali. I can’t say the same for all Vampires.

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The Day After


A decade ago a day like yesterday would have kept me high for a week. That high would have had me working outside or doing anything and everything with the extra energy. But this darn fibro leaves me exhausted for a week if I get one fun day. Not only exhausted but hurting so much I can barely move. I napped a lot today. I’ve downed Advil and have been in general very grouchy. It’s amazing how little I could do and how grumpy I got about it all! The only exercise I had yesterday was standing by the table while we all chatted about hats and where they are going.

The only exercise I had yesterday was standing by the table while we all chatted about hats and where they are going. Even as a young adult I found standing in one place excruciating. It was why I had to give up cosmetology. I loved doing hair, the longer and fancier the better but standing… I long for the chemical smells of a beauty shop. It is why I do my own hair. The chemical high. That and I love how it looks when I’m done.

So I didn’t add much to my new projects. In case you’re curious here are the latest:

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That’s Fun Fur and a soft Red Heart mixed. It’s an easy e-wrap hat. If I have enough of the two yarns I will add a brim to keep out the sun.

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This is my first attempt at socks. I’m making them for my brother. He doesn’t have to walk 8 miles round trip to work anymore but since I got the yarn for that purpose I thought I should go ahead and try. I didn’t work on them today, no energy, thereby less eye sight and even less patience.

Off I go to slather in Icy Hot and go to bed. No more energy, no more brain. Nighty-night.


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Sorry I’m late to the SOCS, Linda G Hill, I was busy with all my PROJECTS. Yes, all those knitting projects have kept me going all day. I am nearly finished with one or two but they take the kind of concentration one needs as they learn new stitches. YouTube tutoring included. I’ll share again when finished.

Part of the reason I am late to the party was the weather. Yep, we got snow again, but with this system rolling in the bones and fibromyalgia knocked me for a loop and when I get to that stage the only thing I can do is nap and hope to wake with less pain. And that did work. Of course that means I may be up for another hour or so catching up on everything I should have been doing at naptime.

If it helps, I am reading your book: All Good Stories, now and hope to be finished tomorrow some time. It is fun.

Well, that’s all I got for now.

 

Service Dog


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It suddenly occurred to me today how I can help Kali not be left at home alone. She has separation anxiety and will tear up the place if left alone. That was why her MamaLaura (my daughter) had to giver Kali to me. She had to go to work and leave the poor pup alone. We are retired so there is almost always someone here so she is never alone. But should I need to go to the city (an hour and a half away) on the senior bus it might be that she wouldn’t be happy. But there might be a time when I need to go to the doctors or something.

So I was looking at this page: United States Service Dog. Has anyone done this? It says I don’t need a doctor’s note though I could probably find my doctors who put me on disability ages ago. She does help me feel better just by being so cute! She’s been well trained as far as simple commands. I think she’d do well on the bus just sitting with me and giving me the pain distractions I need to get through the rough part of the trip.

It is very beautiful (scenic) to see but the road itself is so full of potholes and my tailbone usually hurts so bad by the time we get to town that I can barely walk. After a full day, coming home is even worse, especially if it is dark and I have nothing to distract me from the pain that is so unbearable that I have to sit straight up and not lean back. Then it starts hurting my whole back. Once I am home I feel crippled for a week. It sets off huge fibro flares that make me worthless to do anything but sleep.

Look, I know that having the dog with me won’t prevent a lot of that pain, but it may make it a little easier to deal with. Does that make sense?

Now I just need to figure out how to afford it. I’d love her to have the vest and all, but even the basic (just a certificate and ID card) is $69. Is this a good idea or am I on another wild goose chase that wouldn’t help either of us and money out for nothing????? Are there things I need to think about that maybe others have gone through? It seems like a win-win idea but maybe I am being naïve?

Ugh! Weather!


Just to make a blog about it–I’m not blogging today. The weather is hurting me. I’m going to curl up in that corner over there—–> and sleep and knit until I feel better. That’ll bring me to Stream of Consciousness Saturday. I expect a deluge!


Elusive

Time. Where did today go? I still haven’t done my Spanish and German on Duolingo for the day! I still haven’t written my JusJoJan. Time is probably the most elusive thing ever!

Okay, on top of my ordinary day, with my ordinary disabilities challenging me, I now have taken on my husband’s needs and jobs. Being retired, there isn’t that much to do, the lack of funds make a lot of things off limits (maids, etc.) but keeping up with little things is difficult for me regularly. GAH!!!!! And we have the discussion about all he feels he can do one handed while in pain. So dishes get done. Yay! Feeding and care of furries. Bigger Yay! But the feeding and care of we two humans is the hard part. Standing in the kitchen that you can see your breath in has to be done in quick spurts. Taking doggy outside BRRRRR!

Oh, wait! This isn’t Stream of Consciousness Saturday! But that is what is happening in my head. One shiny chicken after another! Oh! And I got some new looms that I learned about from LoomAHat.com and bought for lots less on sale at WalMart.com I have a scarf in the making for my brother right now.

Maybe it isn’t time that is the elusive thing here. Maybe it is my brain!

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Source: SEEKING EQUILIBRIUM: PAIN AND MUSIC THERAPY

Move Made Manifest


At last, the “iffy” trip and the “iffy” purchase of the acre and the double wide mobile have manifested. I’m sitting in my office/studio/escape looking out my window and seeing miles and miles of sagebrush. I can see little tiny hills far, far away and I can see the horizon. And the sky above goes on forever with feather clouds here and there.

As I sit here I can think of all the times I wondered if this was really going to happen. All the things that could go wrong did go wrong. They made me doubt that I should do this. They made me determined to try harder, but I didn’t want to press the gods that made this happen. What if I were to find out that I’m not supposed to do this? But what if this is exactly what I’m supposed to do? And I go around in circles with this batch of questioning. Still, I was packing boxes and packing boxes and packing boxes.

You see the two-bedroom apartment cave that I lived in before cost me over double what we will pay for this place. Our lease was up and we knew we wouldn’t be able to afford to live in that cave another moment.

In spite of how small the place was, we filled a van that should take a three-bedroom home and still had so much more to figure out how to get it here, or if we should toss it. And that was with C’s son moved out. His bed was the sofa and that was his sofa. So where do we get all this stuff? And how did the place get so dirty? Well, 2+ years in bed basically. And of course, we all know that nobody else cleans except the woman of the house. The pain of the fibro and the depression and the social anxiety all of the bundled up for those two years and all I could do was lay in bed. I tried to get out. I wanted to see friends but when I got to the day of doing it. I’d hit a flare. But this summer was different. I felt better. I got to go on a couple road trips. I got to go swimming. Whatever made me feel better, I am so thankful for it. The “iffy” trip gave me hope, gave me something to live for. And here I am, ready or not!


Magnesium: What Your Doctor Needs You To Know: Including: How to Fight Diabetes, Have a Healthy Heart, and Get Strong Bones!Magnesium: What Your Doctor Needs You To Know: Including: How to Fight Diabetes, Have a Healthy Heart, and Get Strong Bones! by Nolan Edwards

My rating: 3 of 5 stars

This book is very informative. And a great introductory book about the benefits of magnesium in our diets or supplementals.

BUT it was repetitive. VERY repetitive. Maybe because I have read all of this before elsewhere? I did come away with more of a curiosity to try to make sure I get more of this mineral either in my diet or on my body (soaking in Epson Salt or using the oil) to see if it will help with my fibromyalgia.

If you are curious this book is only $.99 for Kindle or free with Kindle Unlimited. Well worth it to see if it is something you might need to add to your heal regiment.

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